Rare Disease Data Trust
To accelerate accurate diagnoses for rare disease patients.
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Finding-Rare.com is a startup focused on bridging the gap between BioPharma companies and healthcare providers to improve the diagnosis and treatment of rare disease patients. The company operates in the healthcare and biotechnology market, specifically targeting rare diseases, which are often overlooked due to their complexity and the limited knowledge available to general healthcare providers.
The primary clients of Finding-Rare.com are BioPharma companies and healthcare providers. BioPharma companies develop novel treatments for rare diseases but struggle to find patients who need their solutions. Healthcare providers, on the other hand, have patients with rare diseases but often lack the expertise to diagnose and treat them effectively.
Finding-Rare.com’s business model revolves around data partnerships and search sponsorships. They leverage electronic health records (EHRs) to identify undiagnosed or misdiagnosed rare disease patients. By doing so, they help BioPharma companies find the right patients for their treatments and assist healthcare providers in delivering better care. The company ensures that all data handling complies with privacy and legal regulations, maintaining the confidentiality and security of patient information.
The startup makes money through two main revenue streams:
1. **Data Partnerships**: They collaborate with healthcare providers to access and analyze EHR data, identifying potential rare disease patients. This service helps healthcare providers generate additional revenue by realizing the value of their data.
2. **Search Sponsorships**: BioPharma companies sponsor searches to find patients who could benefit from their treatments. This targeted approach accelerates the discovery of patients in need, facilitating quicker and more accurate diagnoses.
In summary, Finding-Rare.com aims to make the diagnosis and treatment of rare diseases more efficient and accurate by connecting BioPharma companies with the right patients and helping healthcare providers utilize their data effectively.
**Keywords**: Rare diseases, BioPharma, healthcare providers, electronic health records, patient diagnosis, data partnerships, search sponsorships, privacy compliance, targeted discovery, incremental revenue.